Panders Posted May 10, 2021 Share Posted May 10, 2021 Don't know if this news item would have gone out in other areas, but signatures are required for ALD screening to take placed when babies have the heel prick test. The news item I watched today showed a young boy who was struck down with this brain disease shortly after turning 9 years old, perfectly ok before that. It does affect more boys than girls, but if found early, i.e. the heel prick test, then bone marrow transplant can be scheduled and a normal life had. The US has 13 states where the screening is carried out and in Holland it is too. Click the link, please, and sign this petition. https://petition.parliament.uk/petitions/563123 1 Quote Link to comment Share on other sites More sharing options...
sunnyday Posted May 11, 2021 Share Posted May 11, 2021 Thank you Panders, such a heart breaking condition, I have signed Quote Link to comment Share on other sites More sharing options...
sunnyday Posted May 12, 2021 Share Posted May 12, 2021 Just giving this a wee bump - I guess it has only been shown on our local news, they reported this morning that the petition has 11,000 signatures, would be so good for it to receive more Such a heart breaking story and could all have been so easily prevented 1 Quote Link to comment Share on other sites More sharing options...
Cait Posted May 13, 2021 Share Posted May 13, 2021 Oh my goodness! This completely flew beneath my radar. Has anyone posted it to Twit/face? Quote Link to comment Share on other sites More sharing options...
sunnyday Posted May 13, 2021 Share Posted May 13, 2021 7 hours ago, Cait said: Oh my goodness! This completely flew beneath my radar. Has anyone posted it to Twit/face? Good question Cait - I don't know I wonder if our little black and white furry friend has Quote Link to comment Share on other sites More sharing options...
Panders Posted May 13, 2021 Author Share Posted May 13, 2021 (edited) I personally dont Twit/Face, well I read Twits, but don't Tweet 😂 I would imagine that the people involved may well have posted this. There is a section at the bottom of the Govt. page which has all the logos for Twit/Face. I think the child must live in the Kent/Sussex/Essex area because it was on our local BBC news, rather than national. They have over 11,000 signatures now and are still waiting to hear from Govt. but it would seem 100,000 is more likely to get a real response. Edited May 13, 2021 by Panders Quote Link to comment Share on other sites More sharing options...
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